
One of my lessons this last year has been that I have certain limitations that no amount of willpower will ever change. It's not easy to admit that you have a limitation because no-one really wants to have one. But the hardest part of all is that we live in a society that does not respect limitations.
If you don't believe me try a little experiment. Tell someone that you can't do something because of a condition that you have. Tell them that you can't sit in a chair for longer than an hour because you have a bad back, or tell them that you can't stay out late because if you don't have 8 hours sleep you can't function the next day. Or tell them....oh I don't know. You make it up. But the key is, it has to be something that they can't see. It has to be something that they have to take your word about, and it has to be something that the majority of people can do without any trouble.
Actually, I'll bet you don't even have to do the experiment. I'll bet you already know what will happen, don't you? People will think that you make excuses for yourself. People will think that if you really wanted to do it, you could. They won't say anything most of the time, but you can tell by reading their expressions what they are thinking. You can also read newspapers etc..and get a pretty good idea of the standing opinion on things like this.
My mom says that workaholism is an addiction and that it is an acceptable one in our culture. Think about this one. If someone were an alcoholic and spent all their time away from home, ignoring their family, they would be condemned for it. If a workaholic spends all their time away from home ignoring their family, they will be praised for it. I realize that being an alcoholic is not the same thing as being a workaholic and there are other factors involved in the reason why it is disapproved of but my point is, workaholism is not a particularly healthy way of being, yet it is highly approved of.
We live in a tough society where you are mostly judged by what you have and what your accomplishments are. There is little room for limitations, especially ones no-one can see but you. And if your limitations have caused you to not have much or have achieved much you are thought to be a loser. At least, that's how a lot of people think.
Does it really matter what people think? It depends. As long as you know who you are, it is still lonely, but you can live with it and in the end it doesn't matter. But as far as expecting empathy or any types of concessions, then yes it does matter. You are already at a disadvantage and no-one is going to level the playing field for you in any way and that's the way it is.
Am I saying that I expect concessions? No, I'm not. Through all of this, I still feel like I am lucky. I don't really want any life besides the one I have. Things could be better, but things could be worse too and I'm well aware of that.
But it's hard sometimes. My dad's birthday was Tuesday. We all go out to eat every year on his birthday and cousins, uncles etc...come too. I have something of a reputation with my family. As you can imagine, being bipolar, I have a spotty history and everyone knows it. They don't know why, and I'm not telling them, I'm not that close to them.
But when the conversation finally came around to the fact that I'm not working presently, it wasn't difficult for me to see what they thought of it. I understand that most people are ignorant on the topic of bipolar disorder and if they truly understood, they would not be as judgemental. I also know that even if I told them, they wouldn't understand. It's something that you have to have lived with to truly understand.
I forgive them, but it's still just....hard. I get tired of it. I get tired of people jumping to conclusions about me, conclusions that simply aren't true. I can handle it because I do have a support system but that's because I'm at home right now. When I worked, I didn't have one because it's just the nature of work that there aren't allowances made for my type of issues. And it's more than likely that that will be how it is again when I go back to work. And this makes things hard for very practical reasons.
I'm scared to go back to work and have it start all over again. It was hard. It's hard to keep going when you feel like shit. And you have to go in, no matter whether you feel well or not and people notice. And they talk and they scrutinize you. At my last job, I felt like I just couldn't win. Once I came under their scrutiny they just didn't let up.
Sometimes, I have a hard time with my energy levels. I just get so lethargic that it's an effort for me to do anything. They assumed that I was lazy when I got this way. When I got muddled up, they assumed that I just didn't care about my job. They made a lot of unfair assumptions and I forgive them, but it was traumatic....it's sort of driven me into a shell and made me dread having this ever happen to me again.
So, I have come to some conclusions. First of all, I think that I am always going to have trouble working full-time. I'm not lazy, I just can't maintain that level of functioning demanded, no matter how hard I try. I suppose if I ever have to work full-time again, then I'll just have to...but I don't think that I'll ever be the best employee.
I would really like to work from home. It takes energy to do a job, but for me, dealing with people when I'm not feeling well takes much more energy than just working does. I'm just not 'on' all the time. And people misconstrue it and there is nothing that I can do about it because that's just the way it is for me sometimes. It seems to me that if I worked at home and I didn't feel well, no-one would have to know. As long as I could drag myself to the computer and get the work done, it wouldn't matter if I was so lethargic that I didn't even feel like combing my hair. At least I wouldn't have to deal with people when I felt that way.
So here come the limitations again. I know what I want to do. I want to learn courtroom reporting. Only, I don't want to work as a courtreporter. I want to work with the deaf. I want to do captioning and teleconferences and conventions and attend school with people who are hearing impaired and give them verbatim transcripts of the lecture. I know that I've talked about learning sign language, but that was only because I had told myself that captioning was probably out of the question for me. But this is what I really want to do.
I've e-mailed the director of the program and explained my situation to her and asked her opinion. I told her that I think that I could learn to do this accurately, but that I'm afraid that I might have trouble being completely accurate all of the time. I told her that I know that this would make me unable to do courtroom reporting, but asked her if it would make me unable to do the Cart reporting as well?
It will be a bitter blow for me if she tells me that she thinks that due to my problems, it probably wouldn't be the field for me, but if she does, I guess I will just have to live with it. So, I'm awaiting her answer. Hope it's good news. If not, then I guess I will just have to accept my limitations.